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 Post subject: Epilepsy
PostPosted: Wed Sep 26, 2007 3:06 pm 
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I have epilepsy, and about 1 in 200 have it so there are probably other BS members who have it.

Some links
1. A good general article about epilepsy
http://en.wikipedia.org/wiki/Epilepsy

2. for the younger members, not too technical
http://www.epilepsy.com/kids/kids.html

3. Seizure types explained and first aid for each type
http://www.epilepsy.org.uk/info/chart.html

4. Aspergers syndrome on BS
http://baltosource.timduru.org/board/viewtopic.php?f=6&t=10883&start=0&st=0&sk=t&sd=a&hilit=syndrome

5. Asperger’s syndrome and epilepsy? (See quote below)
http://apt.rcpsych.org/cgi/content/full/10/5/341


My Epilepsy

I believe I have Asperger’s syndrome which may have caused my epilepsy
(See link 4, and/or the quote below or link 5)

Quote:
(From link 5)

Over a third of people with autistic-spectrum disorders develop epilepsy, the risk being linked to the degree of developmental delay and receptive language deficit. There is no specific study of epilepsy in Asperger syndrome, although the relatively normal ability and language suggest that the risk is lower, possibly 5–10%, and that it is more likely to start later, in adolescence or early adulthood.


I was diagnosed with epilepsy at 18-at the start of puberty.

My seizures

(See link3)

Tonic-Colonic
I don’t have too many of the Tonic-Colonic seizures now but when I do get them I lose consciousness and may fall down, go rigid, twitch and gnash my teeth.
Afterwards I may be very determined to do something and can be quite strong. I am confused dizzy and usually have a sleep and lose my appetite.
I don’t have any recollection of the seizure.


Most of my seizures are absences or a form of partial seizures and I am currently having them nearly every day.

In Absences:
I may simply go into a daydreaming state.

In Partial Seizures
I may appear to be daydreaming be unable to speak properly, I don’t usually speak but if I do I speak gibberish.
I cannot read, understand speech or think properly.
In the more severe ones I may retch or even vomit
Recovery and after effects can be tiredness, and appetite loss

There is a lot more to say, but I will add it later.

Please don’t hesitate to ask any questions-I don’t get embarrassed!

Sheba

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Last edited by ShebaDove {wolf} on Wed Sep 26, 2007 3:56 pm, edited 1 time in total.

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 Post subject: Re: Epilepsy
PostPosted: Wed Sep 26, 2007 3:52 pm 
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The abscence one is the type i have, i take meds every morning, and its true, im not sure when it happens, and you do it for like 5 seconds, my mom always used to tell me when i just had one bbefore i had gotten on meds. and one of our mods, kari, has epilepsy.no the type i have is NOT scary, for i wouldnt even know i have had them if nobody has told me.
Absence

(used to be called ‘Petit Mal').
The person may appear to be daydreaming or switching off. They are momentarily unconscious and totally unaware of what is happening around them.

This type of seizure is more common in children and teenagers

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 Post subject: Re: Epilepsy
PostPosted: Wed Sep 26, 2007 11:40 pm 
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yupik wrote:
I don't think Kari has epilepsy :?


I don't know if she dose or not but it is her choice to say so if she dose.

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 Post subject: Re: Epilepsy
PostPosted: Wed Oct 17, 2007 12:44 am 
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I recently had a different kind of seize, it effected my sight-it was like my eyelids were trying to close themselves. It as very hart for me to keep hem open and i could barely see unless I squinted through on eye, even then it was difficult.
It happened a couple of times, and I gave up truing to open my eyes until it was over.
I think I may have heard non-existent sounds in my head but i can't really remember.
:?

Sheba

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I had problems when I tried to change (it was too long). Now my it has changed back to my old one in some places on the forums but it is still ShebaDove {wolf} elsewhere! I will pm a mod about it.


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 Post subject: Re: Epilepsy
PostPosted: Wed Oct 17, 2007 8:15 am 
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Wow...my uncle has seizures. He actually had one while he was DRIVING. crashed right into a brick wall. :(

All I know is that people who do have epilepsy have to be strong you know? And heck, with the rate medical science is working...within a few decades there may be a cure...

All we can do is hope. ^^


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 Post subject: Re: Epilepsy
PostPosted: Wed Oct 17, 2007 8:46 am 
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Kodi Girl wrote:
Wow...my uncle has seizures. He actually had one while he was DRIVING. crashed right into a brick wall. :(

All I know is that people who do have epilepsy have to be strong you know? And heck, with the rate medical science is working...within a few decades there may be a cure...

All we can do is hope. ^^


I hope you're uncle was OK- :(. I often wish I could drive-more for freedom/transport than anything else. Either my mum drives me or I use the bus. Living in the UK I hav managed to acquire a free bus pass-bu i would rather pay the fare and not have the epilepsy.

I try to be string bu tit dos get me down sometimes :( one day I will have severak siesures and the next none-and there seem no rhyme or reason for it :? .

Maybe they will find a cure one day, in the meantime new and better drugs will improve treatments.

Anyway thanks for you're post Kodi-girl.

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I had problems when I tried to change (it was too long). Now my it has changed back to my old one in some places on the forums but it is still ShebaDove {wolf} elsewhere! I will pm a mod about it.


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 Post subject: Re: Epilepsy
PostPosted: Thu Oct 18, 2007 10:46 am 
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Hm, seems it's even a bit more common than I thought.
A friend of mine's brother has epilepsy; so does Hugo Weaving (the actor who played Elrond in The Lord of the Rings and many other great roles.)

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 Post subject: Re: Epilepsy
PostPosted: Thu Oct 18, 2007 12:49 pm 
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Letranger wrote:
Hm, seems it's even a bit more common than I thought.
A friend of mine's brother has epilepsy; so does Hugo Weaving (the actor who played Elrond in The Lord of the Rings and many other great roles.)


Yes it is quite common unfortunately but it is very variable in seizure types, frequency and severity.
I Knew about Hugo Weaving-i was going to post that myself sometime-but that's OK, he had a seizure on stage once.
Sheba

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I am still ShebaDove {wolf}
I had problems when I tried to change (it was too long). Now my it has changed back to my old one in some places on the forums but it is still ShebaDove {wolf} elsewhere! I will pm a mod about it.


Art / Images <--Linkz!


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 Post subject: Re: Epilepsy
PostPosted: Thu Oct 18, 2007 9:40 pm 
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Shebawolf1 wrote:
I Knew about Hugo Weaving-i was going to post that myself sometime-but that's OK, he had a seizure on stage once.
Sheba


*nods* Yes, I read about that too.
For the longest time I was a fan of his and never knew, though.

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 Post subject: Re: Epilepsy
PostPosted: Thu Oct 18, 2007 11:15 pm 
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Eep, epilepsy. Although I do have Asperger's I don't have it, so I guess I'm one of the luckier ones, but I do feel for you. To have epilepsy as well must be some hard way to live for you.

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 Post subject: Re: Epilepsy
PostPosted: Fri Oct 19, 2007 1:32 pm 
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I don't have epilepsy. Count myself lucky I guess, then again it wouldn't stop me or anyone from having a rich full life.

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 Post subject: Re: Epilepsy
PostPosted: Sun Oct 21, 2007 6:49 pm 
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I don't have Epilepsy but there's a 50/50 chance that I have Parkinson's disease.

But I do know someone who used to have Epilepsy so, my condolanses.

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 Post subject: Re: Epilepsy
PostPosted: Sun Nov 18, 2007 2:07 pm 
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Awww bless yas. I'd consider myself lucky I guess...

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